Tuesday, October 18, 2011

Overwhelmed

I have been feeling overwhelmed lately. I can't quite put my finger on the reason why, but its enough to affect me more than I'd like. Today, I feel like it comes down to Evan. Or to raising children in general. I found myself getting very upset with Evan and instantly I feel terrible for having these feelings. On top of that, I've been seeing more information about Angelman Syndrome and not liking it. There have been several deaths this year that I've actually been made aware of instead of being oblivious to. Young Angelman children dying. Some for health reasons. Some from accidents. One child ran behind his grandfather's car as the grandfather was backing out of the driveway. One drowned. One was riding a school bus home from preschool and because there was not an aide on the bus, was found collapsed on the ground by a parent of another child when they got on to get their child off.

In case you are wondering why those three might hit home with me: Evan has found new fun in running across parking lots with no hesitation, even when I just let go of his hand briefly to open the door. Evan loves water. All Angelman children do. The fact that something they find so much joy in caused the death of one hurts my heart. The last one is a little less direct, but more of a horror story that I'd never want to be a part of.

That is overwhelming.

I also came across a conversation on facebook about placing older Angelman children into group homes. It was a long conversation with varying opinions on group homes, microboards, being raised by siblings, etc. I let myself read it for too long and start thinking and worrying about things that have nothing to do with us right NOW. I let myself get overwhelmed.

What else is overwhelming? I use Evan as an excuse a lot. I don't work hard enough to be a good mother to him, or to take care of myself. My laziness thrives on this excuse. Which then affects how I'm a mother to Ryan.

To top it off, I allowed myself to start thinking about wanting more children. It's a beautiful and reassuring thought that we might have more children. But then last week happened and I start telling myself, "how can you expect to have more children when you can't take care of the two you already have." I know I sound overly dramatic and I probably am, but it is an overwhleming feeling and thought right now.

On Sunday, I had a moment that took over after our refreshing drive through the mountains on Saturday. I walked into a meeting and saw the back of an older member of the ward. Her hair is white and was twisted up and held with a big brown barrette and my first thought was: "Mom." And I wanted to be able to go home, curl up on my parents water bed and be reassured, taken care of, helped. Not that Oliver doesn't do those things, but its a little different when coming from your mother. So then I became sad that I don't get to drive a short distance to get that from my parents. That I have to be that to my children and how I really need to improve in that part of my life.



I was just glancing through my old posts and came across a handful that were never actually posted. Two of them connected to Angelman syndrome that didn't have a whole lot in them, just a title and a line or two. But then I came across one that I kind of thought out and wrote a lot on. So I'll actually put those words below, maybe there is someone who can gain some insight from it, or I can glean something from the words myself.



I decided to watch one of the Mormon Messages on lds.org. It was titled Motherhood: An Eternal Partnership with God. It struck me directly at the beginning with the images of raising children. the playing & teaching, and then the added image of tearing the child's finger off the toilet seat with the toilet paper strewn across the ground. It's a beautiful message from Elder Jeffrey R. Holland. I also have to give credit to the fathers that are also doing their part in raising their children. Oliver does magnificently in helping to keep our family sane. But what struck me the most was at the end of the shorrt video, Elder Holland quotes a scripture. "Press forward with a steadfastness in Christ, having a perfect brightness of hope." It made me start to think about that word and phrase. A phrase that I haven't put a lot of thought into recently. What does a "perfect brightness" mean anyway?



I looked up hope. dictionary.com says that the noun is "the feeling that what is wanted can be had or that events will turn out for the best" or the verb of "to look forward to with desire and reasonable confidence." Those are good, positive things right? Hope is something everyone has. We hope that our futures will be successful. We hope that things will improve from their current situations. We hope that we can teach our children and spend enough quality time with them. When you look on lds.org under hope it says "in our everyday language, the word often has a hint of uncertainty.(...) In the language of the gospel, however, the word hope is sure, unwavering, and active." A feeling that things will turn out for the best, or an unwavering & active pursuit toward that positive outcome? That's such a dramatic difference. Connecting that to my motherhood experience: I can often have those days where I hope that my children are gaining positive characteristics and receiving the love that I try to give them. But then there is a day like yesterday where I take an active(not reactive) role in the life of my children and the hope becomes unwavering that I gave them a day of positive learning experiences. There is more to hope than that though. Its a hope of our eternal nature and knowledge of the Lord and of Heavenly Father's plan for us to return to Him.



What of that perfect brightness? What does that even mean?! Perfect. Okay. That's an easy one...its...perfect. No flaws. No weaknesses. Whole. Okay, now brightness. Um...full of light? Glaring? Blindingly shining? How can that explain hope? Have you ever heard of a glimmer of hope? That's a visual I've had in my mind before. A small faint idea that something will happen. A glimmer. A fleeting glimpse. A perfect brightness of hope is the exact opposite. It's not a tiny flicker off in the distance. It's an overwhelming awareness of the way things will turn out. "With hope, we can find joy in life. We can 'have patience, and bear with . . . afflictions, with a firm hope that ye shall one day rest from all your afflictions'.(Alma 34:41)" That also comes from lds.org in their Gospel Library. I've often heard the combination of faith, hope & love in regards to many things spiritual. There is a difference between faith & hope. Faith is a belief or knowledge in something. "Faith is knowing the sun will rise, lighting each new day." Hope is also a connection to knowing something, but has more connection to our actions on this earth.



Thanks for reading, if you did. Sorry for the unfinished thoughts. I'm owing it to that feeling in the title of this post.


But I am still grateful for these beautiful gifts from God. Looking at their faces and remembering their innocence is helpful. Refocusing on my family. That's what I need to do. Wish me luck.

9 comments:

lori said...

I was so touched by all of these thoughts, Megan. I appreciated your honest reflection and I have ALWAYS appreciated your example of pressing forward when life is, truly, overwhelming. I also loved your insights about hope, your comments about "perfect brightness" in opposition to a "glimmer". That is a really meaningful thought and I'm so glad to have read it - glad that you formulated it and posted it! I love you, friend! You are a wonderful woman and I continue to learn much from you!

Vicky said...

Oh Megan, I just want you to know that you are not alone. I have often had days recently when I have felt so overwhelmed and that I am "not good enough," and it can be very lonely. But you're better than you think, and I know you're a wonderful mother. As I read your blog I continue to be impressed by you.

Anna said...

Thanks Megan. I relate to your first half a lot. It is nice to know that I'm not alone and thanks for your encouraging words. It is all about perspective, right? And the Lord can give us that.

Kristen said...

I know exactly how you feel! I don't want to belittle the reality of Angelman syndrome and how it really is different from raising children without it... but I have those same fears! Because those things happen to kids without it too- I have a friend who's son drowned in their pool. It's sad to lose a child no matter the circumstances- and I think that as mother's it comes with the territory to worry about things like that. And I think that hearing stories of other children's deaths SHOULD worry you- it'd be worrisome if they DIDN'T! But take heart. What you are going through IS difficult, but you'll make it through and perhaps even wonder why you thought it would be hard! I can't imagine what you've had to go through with raising Evan- and what you will go through- but I know YOU and I know that whatever it entails you can handle it! I love you!

Laurie said...

Motherhood is overwhelming. For years I have felt inadequate as a mother. Add to that working and I am always feeling as though I never measure up. I cannot even imagine having a child with special needs--that is taking mothering to a whole new level that I cannot even comprehend, but I respect and honor those who do. I am so grateful though that children are forgiving, Heavenly Father makes up for my imperfections, and that I have the gospel to guide me in this journey. Furthermore, we always judge ourseleves more harshly than others do. Embracing motherhood is a life long journey, each stage of the child's life changes our responsibilities. When I start feeling overwhelmed and discouraged I remind myself that we were created to have joy, I need to slow down and enjoy my journey with my children. Although there are times when I wish I could crawl into my parents bed and let them take over just for a while.
However, since that is not possible I guess we go forth with faith and hope.

Heidi said...

I've had those days as well. As a mother of a son with disabilities, I take great hope in the fact that I was entrusted with such a wonderful child. Tom is such a blessing in our lives. He got his patriarchal blessing many years ago and while listening, I had the distinct feeling that I would outlive him. At first I was distraught. Then, as I thought about it, I recognized that if that does happen, it will be a blessing in my life. I won't have to worry about who will take care of him or how. I don't look forward to losing my child, but know in the end it will be a great comfort. Does that make sense? I cried a lot of tears before coming to that recognition.

You and I have the promise of knowing that our sons are protected from the adversary and will have celestial glory. Nothing will be denied them. I look forward to knowing him without his disability.

I'm rambling. Difficult days come for every mother with or without children with disabilities. The trick for me was knowing that tomorrow will be another day and I can keeping enduring.

Love you.

mom2_7 BRADYS said...

Encourage that glimmer of hope to become a brightness that will overcome the doubts.
ENDURANCE is not easy BUT very worth it!
Megan, I love you, Evan, Ryan, and Oliver.
Working together is what we do as members of families, yet that can also be one of the biggest challenges in our life.
The expression of Your thoughts and concerns only help us know what you are thinking and allow us to explore more ways to support each other. Heidi, Kristen, Lori, Vicky, Laurie,and Anna are just a few people that truly love you and can help you even though they are not with hugging distance.
Thanks for writing!
I'd love to walk into the bedroom and see you curled up on the blankets. I'd love to reach out and give you a hug.
May my love fly swiftly across the miles to you.
Now take a big breath and keep moving forward. :-)

Nicole said...

Megan,
It's very clear that you're not alone. During general conference I started thinking about having more kids too. Then immediately the doubt came- how can I have more kids when I'm not doing a good job with these ones? As I'm writing this I'm having the thought that those feelings of inadequacy and inability come largely from the adversary. I love you and think you're wonderful. The Lord only requires our best.

Brandon and Lacey said...

Thank you for your thoughts on hope, definitely given me more to think of tonight and for the busy week. You're a great mother Megan and I continue to look to you as an example in my life. Thank you for your honesty in posting your thoughts. It helps me realize that motherhood isn't a single event, it's a process with ups and downs that will help stretch us and make us better.